Casting 4 A Cure

May 4, 2009

Casting 4 A Cure

I first spoke to Bill Farnum over Facebook and became intrigued with the cause he has going, Casting 4 A Cure.  We then had the opportunity to meet up in Southeast Idaho about 3 weeks ago and it is easy to tell that this guy is doing good in the world.

It is always exciting when you meet people that represent a worthy cause , and Bill is one of those people.  The driving force behind this charity is Bill’s beautiful little daughter Ella who was diagnosed with Rett Syndrome in December of 2007.cure11

So what is Casting 4 A Cure? (In Bill’s words)

Casting 4 A Cure was an idea born out of necessity; necessity to find a cure for Rett Syndrome.  I wanted to combine my passion for fundraising with one of my other passion fly fishing.  My original plan was for 4 – 6 guys to go up to the Rockies and have some fun and raise a little money for Rett Syndrome.  Well, as time went on and more people caught wind, they said “I want in.” Who am I to say “No” ……. So we figured out the logistics on how to put together a world class fly fishing tournament with a twist.  8 teams consisting of two teammates would vie for the coveted Casting 4 A Cure trophy by pulling some of the biggest fish in the Yampa valley to their nets.  Take you 4 biggest fish on Day 1, and combine that score with 4 more “pigs” on Day 2 and you have your winner.

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Combine two days of fishing on private water for fish averaging 18″ and strong as bulls, with a fantastic auction with world class trips, gear from such companies as Sage, Fishpond, Reel Pure, Smith Optics, Ross, Patagonia and Cloudveil, then top it off with a 16 person Texas Hold Em Tournament and you get one heck of a great time.

So what is Rett Syndrome?

Rett Syndrome (RTT) is a unique neurodevelopmental disorder which begins to show its  affects in infancy or early childhood.  It is seen almost exclusively in females, although it can occur rarely in boys.  The disorder severly disrupts gross and fine motor skills as well as robbing the girls of their ability to speak and communicate with the outside world.  Seizures and breathing problems can also be prevailing symptoms.

It affects every aspect of a family’s life, as our girls our dependent upon us for almost everything , from helping feed them to helping them get around, bathing, and most other daily tasks that most of us take for granted.

Rett Syndrome Statistics

1.  Rett Syndrome is one of the only neurological disorders that currently has a chance for a cure in the near future, as researchers now know the exact gene that is affecting the victims of this devastating disorder.

2.  99.5% cases of Rett Syndrome are sporadic, meaning the parents do not carry the gene.

3.  Rett occurs in about 1 in 15,000 births.

4.  90% of the time Rett is misdiagnosed as Autism or Cerebral Palsy.

5.  You can help us find a cure.  Please donate to IRSF or a Rett Syndrome organization in your area.  You can donate online at: International Rett Syndrome

We would encourage all to visit Bill’s website and get involved in this worthy cause.  Thanks. Casting 4 A Cure

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2 Responses to “Casting 4 A Cure”

  1. Amy Wagner Says:

    I think that this is a stunning way to raise money for such a worthy cause, this is the first that I have heard of this disease. You have a beautiful daughter and I pray that the cure is found soon.

    Reply

  2. BG Says:

    Great article…always a good read.

    Reply

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